Merakoi Voices: Ep 3 | Building Trust and Diversity in Clinical Trials

Описание: 🎙 Welcome to Merakoi Voices.

We sit down with Tina Aswani Omprakash, a passionate patient advocate and expert in inflammatory bowel disease (IBD), to discuss the critical need for inclusivity, education, and patient-centered approaches in clinical trials.

Tina shares her personal journey navigating IBD, breaking the stigma around clinical trials, and advocating for better representation of diverse patient communities, including those from socioeconomically challenged and historically underrepresented groups. She highlights the importance of rebranding clinical trials to encourage earlier participation, the role of patient advocates in trial design, and the untapped potential of decentralised trials in reaching global and underserved populations.

Key topics covered include:
• Debunking myths about clinical trials (like the placebo misconception).
• Improving diversity and inclusion in clinical research.
• Empowering patients through advocacy and education.
• Collaborating with patient communities to transform the future of healthcare.

Join us as we explore how Tina’s work is paving the way for a more patient-led and equitable healthcare system, reshaping the narrative of clinical trials for IBD and beyond.

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00:00 In this episode
00:35 Why do patients see clinical trials as a last resort?
04:59 Pre-existing, negative beliefs, about clinical trials; such as getting a placebo
08:22 The importance of educating people of colour and LGBTQ+ communities
11:37 Why early patient consultancy is important, with both lay patients and patient experts
13:57 Trial set-up optimisation and decentralization
17:34 Including patient organisations in the dissemination of information