Patient Registries: From Data to Better Care
Автор: Health Research Charities Ireland HRCI
Загружено: 2025-05-15
Просмотров: 165
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This video was created for the 2025 Irish Health Research Forum event, “Is it time to get serious about patient registries?” It brings together the voices of patients, advocates and clinicians to explore how registries can transform care, drive research, and support better decision-making.
Featuring Dr Dmitri Wall, consultant Dermatologist and registries expert and patient representatives, Brona Kearney of Friedreich’s Ataxia Research Alliance Ireland & Mark McDonnell of NET Patient Network. Through their real-life experiences and expert insight, it shows why patient registries are more than just databases - they're powerful tools for improving outcomes, ensuring access to treatments, and making every patient count.
For more information on this event, see here: https://hrci.ie/may-2025-is-it-time-t...
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