Webinar launch of A Friendly Guide to EDI in Public and Patient Involvement (PPI) Feb 2026

Описание: Do you know that equality, diversity and inclusion matter in PPI, but aren’t sure where to start? Have you ever wondered whether your PPI approach is genuinely inclusive, and what you could do to improve it?

On Feb 25th 2026, the Rare Disease Clinical Trial Network (RDCTN) and Health Research Charities Ireland (HRCI) jointly launched a new, friendly guide to Equality, Diversity and Inclusion (EDI) in Public and Patient Involvement (PPI). In this video, you’ll hear from panellists Dr Avril Kennan (HRCI), Charlene Young (PPI representative - I Am Charlene) Dr Cassandra Dinius (RDCTN) and Panel Chair, Prof Rachel Crowley for a practical walkthrough of the guide, shaped by lived experience and cross-sector expertise.

The guide can be found at the following websites: https://hrci.ie/a-friendly-guide-to-e... or https://rarediseaseresearch.ie/public...

Whether you are just starting out with PPI or looking to strengthen your approach, the guide offers clear, practical actions to help make involvement more inclusive. Co-created with people with lived experience, family members, charities and researchers, it draws on open discussion and shared learning from two dedicated workshops.

The guide was supported by PPI Ignite Network @ UCD Seed Funding, inspired by the diverse rare disease community, and driven by a partnership between RDCTN and HRCI - Health Research Charities Ireland.