Patient-Led Research Collaborative | Patient-Led Research Fund (PLRF) 2025 Webinar

Описание: Patient-Led Research Fund Webinar 2025 | Aligning community needs with research priorities

Hear the results and latest progress from the 10 studies funded by the Patient-Led Research Fund — biomedical research projects selected by a panel of patient-researchers with both scientific expertise and lived experience of Long COVID and/or ME/CFS.

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00:00 - Introduction
03:30 - About the Patient-Led Research Fund
12:55 - Agenda
13:10 - Braeden Charlton, PhD - Skeletal Muscle Abnormalities in Long COVID
23:35 - Q&A
25:45 - Caroline Dalton, PhD - Fibrinaloid microclot quantification in plasma from people with Long COVID and ME/CFS
37:25 - Q&A (Patient Rep: Michael Natt)
42:20 - Liisa Selin, MD, PhD - Altered T cell responses in Long COVID (PASC) and ME/CFS
55:20 - Q&A (Patient Rep: Megan Fitzgerald)
57:25 - David Esteban, PhD - Alterations in tryptophan metabolism in the gut microbiome of people with ME/CFS and Long COVID
1:09:55 - Q&A (Patient Rep: Tess Falor, PhD)
1:11:00 - Megan Fitzgerald, PhD - Nothing for us without us: aligning research funding with patient priorities
1:23:38 - Break
1:23:50 - Return
1:24:25 - Roshan Kumar, PhD - T cell dysregulation revealed by single-cell profiling of ME/CFS and Long COVID patients
1:35:50 - Q&A
1:38:35 - Per Sjögren, MD& Bo C Bertilson, MD - Surgery for foraminal stenosis in ME/CFS
1:49:35 - Q&A (Patient Rep: Tess Falor, PhD)
1:55:20 - Wenzhong Xiao, PhD - Systems Biology Approaches to Uncovering Disease Mechanism and Drug Repurposing for Long COVID
2:10:25 - Q&A (Patient Rep: Becky Taurog, PhD, Chimére L. Sweeney)
2:16:55 Alain Moreau, PhD - Epigenomics of Long COVID: Insights, Breakthroughs, and Emerging Hope.
2:29:05 - Q&A
2:31:15 - Break
2:31:39 - Return
2:31:50 - Janet Mullington, PhD - Characterizing non-restorative sleep in post-viral disease to advance intervention innovations
2:44:35 - Q&A (Patient Rep: Letícia Soares, PhD)
2:47:53 - Michael Peluso, MD - Monoclonal antibodies in Long COVID: what needs to happen next
3:01:30 - Moderated by Julia Moore Vogel with Liisa Selin, Janet Mullington, & Roshan Kumar (research grantees), Anisha Sekar (patient rep), and Hannah Davis (PLRF admin) - Advancing Long COVID Research: The Power of Patient-Centered Science and Patient-Driven Funding
3:18:37 - Closing Remarks