Canavan disease/Postponing your Make A Wish trip to be sure everyone would have the memories.
Автор: Courageous Parents Network
Загружено: 2015-03-06
Просмотров: 124
Описание:
"We postponed Make-a-Wish until Jess was old enough to remember." • Canavan disease/Postponing your Make A Wis...
The mom of two daughters, the younger one who has the life-limiting illness Canavan, talks about how the grief they first experienced with the diagnosis, and then how they didn't want to take the special trip until their older daughter was old enough to remember it. "I prayed over the years that Rachel would live long enough so that we could go to DisneyWorld and Jessica would have the memories." If your child has Canavan disease or another pediatric life threatening illness, this mom's perspective may help you find your way. Visit www.courageousparentsnetwork.org to see more videos.
Повторяем попытку...
Доступные форматы для скачивания:
Скачать видео
-
Информация по загрузке:
