Chiari Malformation MRI Results | 2 Boys, 1 Big Day!

Описание: This MRI day was a big one for our family! Both Mason and Jack had their scans on the same day to check for Chiari malformation. Mason’s MRI was his two-year post-op check after his second decompression surgery, and Jack’s was to monitor his Chiari after one year.

If you’re new here, Chiari malformation happens when part of the brain extends into the spinal canal, which can cause a wide range of symptoms. Both of our boys were diagnosed early in life, and Mason has already been through two decompression surgeries and a VP shunt surgery for hydrocephalus all before we found out about his Duchenne MD diagnosis! Jack’s scan this time brought such a sigh of relief!....No surgery needed and no more MRIs unless symptoms pop up!

Days like this can be overwhelming, but they’re also a reminder of how far we’ve come. We share our family’s journey living with Duchenne muscular dystrophy and Chiari malformation to raise awareness, help other families feel less alone, and show that even on hard days, there’s always hope. #chiarimalformation #mri #chiari #duchenne #familyvlog #dmd

This is the life of a DMD Family.

Disclaimer: This is not medical advice. We are just a normal family, with extraordinary kids, just like you. Please consult with your doctors before making any significant medical decisions. Most importantly- do your own research.
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