These Braces Will Change Mason's Life (AFO & Night Splints)

Описание: Ever wonder how AFOs and Night Splints help kids with DMD? Today Mason takes a giant leap forward (Thanks to Shriners Children's Hospital)! We are also faced with Jack's Exondys program changes, but we see progress with his treatment!

Mason's AFO/Night Splint Fitting 👉🏻:    • Custom Leg Braces (AFOs) & Log-Rides!  

Disclaimer: This is not medical advice. These videos simply serve as documentation surrounding this treatment and decisions we've made, as parents, to potentially better the lives of our children.

====================
What's Elevidys? Elevidys is a gene therapy from Sarepta. It's the first gene therapy FDA approved for pediatric patients (4-5 years old) with Duchenne muscular dystrophy.

Sarepta has also produced Exondys 51.

HUGE THANK YOU to Sarepta (Elevidys) and the Seattle Children's Hospital!!!
====================

Hey! If we're meeting for the first time- We are the Bafus family, and we are starting this YouTube channel to give hope, document our journey, and to shine light on duchenne muscular dystrophy.

For our first 7 days, we posted one video a day, documenting Mason's $3.2 million, once in a lifetime gene therapy.
You can watch that here ➡:    • Mason's Gene Therapy  

====================

We are typically private people, just like you, but this disease has forced us more into the public, and that's ok. We've learned that this is not a disease that anyone can fight alone. So we decided to take to YouTube to help spread the message and raise awareness of this rare disease.

You can follow us here 👇
  / bafusfamily  
   / @bafusfamily  

#afo #dmd #familyvlog