02/02/2026 - Hi-Risk/Recurrent/Advanced PCa Men & Caregivers

Описание: Our NCI-AnCan presentation, "Playing the Long Game"    • "Playing the Long Game" - Does your Recurr...   is a must watch, especially if you're BCR or close. A game changer!

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virt...

AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely... 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor's Pick: Unrelated Newbies from either Coast have almost identical issues.

Topics Discussed
Our two Newbies are 'twins' - both denovo Mx on the cusp between high and low volume mets, and both with less experienced GU med oncs; 4x chemo down doing well with a full head of hair!; finding an exercise program; contacting NCI; Orgovyx trumps a 6-mo. depot shot; early radiation cystitis; finding Dr. E; with heart history, Orgovyx or Lupron?; discussing NCI trial & adaptive therapy

Chat Log
(abridged; see Blog Post https://ancan.org/hi-risk-recurrent-a...)

AnCan - Rick sent: 5:55 PM
Technical assistance 877 582 7011

AnCan - Rick sent: 5:56 PM
Playing the Long Game    • "Playing the Long Game" - Does your Recurr...  

Steve Roux, North Michigan sent: 6:25 PM
orgovyx https://www.orgovyx.com/

AnCan--John A sent: 6:25 PM
aka relugolix

Eric James; Tyler TX sent: 6:28 PM
So they were unable to find any prostate cancer within the prostate biopsies? That is strange.

AnCan--John A sent: 6:29 PM
right, Eric

Steve Roux, North Michigan sent: 6:29 PM
But the MRI came after the biopsy I think?

AnCan--John A sent: 6:30 PM
MRI 2 pelvic lesions PIRADS 4 and 5. July 2025

AnCan--John A sent: 6:30 PM
biopsies April and August

Steve Roux, North Michigan sent: 6:32 PM
So the 1st biopsy was a "blind" biopsy

Len sent: 6:32 PM
Yes, Steve.

AnCan - Rick sent: 6:34 PM
Dr. David Wise, GU Med Onc NYU Langone https://nyulangone.org/doctors/133643...

Dana Rathkopf GU MO http://www.mskcc.org/cancer-care/doct...

Steve Schuler (Go Seahawks!) sent: 6:46 PM
And also the bone strengtheners question

Steve Roux, North Michigan sent: 6:56 PM
Someone from Seattle is called a Seattleite

Steve Schuler (Go Seahawks!) sent: 6:58 PM
Someone from Michigan is a Michigander. I'm both.

Jim Marshall, Veteran, Alexandria, VA sent: 6:59 PM
Heck, Indianians are HOOSIERS

AnCan--John A sent: 7:04 PM
prostate and bladder specialist

Jim Marshall, Veteran, Alexandria, VA sent: 7:05 PM
Indeed I heart issues and Abiraterone is off the table for the future when I go back on treatment

Jeff Marchi - San Francisco sent: 7:06 PM
no kidding Jim Abi caused me a lot of heart issues

AnCan - Rick sent: 7:07 PM
Larry Fong https://www.fredhutch.org/en/faculty-...

Steve Schuler (Go Seahawks!) sent: 7:14 PM
Have they done a DEXA (for your bone)?

Steve Roux, North Michigan sent: 7:18 PM
Great Meeting again gang! I'm out - time to walk the dog.

michael perillo sent: 7:21 PM

Hi all, need to leave the meeting. Obviously have quite a bit of work to do re possible change to orggovyx, possible use of radiation, chemo or other triplet approach, possible somatic testing as well as second opinion. Will follw up on future meetings. Thanks Michael

AnCan--John A sent: 7:21 PM
Ok Michael, welcome

Eric James; Tyler TX sent: 7:25 PM
The weight you use is relative to your strength. Weight is usually selected based on how many reps you are to do.