Sanfilippo Syndrome/A mom whose son had Sanfilippo shares some helpful tips.

Описание: "Try to hold onto the good things that have happened."    • Sanfilippo Syndrome/A mom whose son had Sa...  

The mother of a son who died from Sanfilippo Syndrome shares a few tips: take a deep breath, don't second guess yourself, let yourself feel sad when you're sad, don't read the books for a while, wear something every day that reminds you of your child. If your child has Sanfilippo Syndrome or another pediatric life threatening illness, this mom's perspective may help you find your way. Visit www.courageousparentsnetwork,org for more videos.