Damian gets a hospital bed 💙 Rare Disease Vlog 💙 Medical Mom Life

Описание: Come follow us over about a week of therapies, doctor appointments, medical supply deliveries (including Damian's first-ever big boy bed!), and finally putting Christmas decorations away 😅

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💙IN THIS VIDEO 💙

Chewy Tube: https://rivr.link/psd-chewyTr
Disposable Bed Pads: https://rivr.link/psd-bedpad

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💙ABOUT DAMIAN💙

Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to raise the $3 million needed to expedite the development of treatment and save his life.

Every single dollar makes a difference and has brought us so far. If you can, please consider a small donation which can be made by visiting SaveDamian.com (there are 4 ways to donate linked at the top!)

We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you so so much for your help 💙

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💙 PLEASE HELP 💙

GoFundMe: https://gofund.me/24dc59ae

Blog & more ways to donate and support: https://www.SaveDamian.com

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0:00 - Intro / OT
1:45 - Prepping for the Bed
7:01 - CHLA appts
8:22 - Taking down Christmas
9:58 - Aquatic Therapy
10:23 - The Bed is here!
14:35 - Medical equip talk

Tags: #rarediseases #medicalmom #fundraising #raredisease