What do Adults with Autism & Other Neurodevelopmental Disorders (NDD) Value in Adult NDD Care?
Автор: AIR-P Network
Загружено: 2024-10-15
Просмотров: 198
Описание:
There are few specialists that serve adults with Neurodevelopmental Disabilities (NDD), and most adults with NDD receive care from providers without specialty training in NDD. Care for this population is highly variable, and patient and caregiver priorities in this age group are not well known. We aimed to explore individual and caregiver values around adult neurodevelopmental care.
In this qualitative study, we conducted 22 semi-structured virtual interviews from September 2021 to February 2022 with randomly selected adults with NDD and/or their caregivers. The need for adult neurodevelopmental care is growing as more individuals with NDD are living into adulthood. Better understanding of patient and caregiver values can help shape this emerging field to meet the needs of this unique, often overlooked and underserved, population.
Presentation slides and resources available here: https://drive.google.com/drive/folder...
This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under the grant #UT2MC39440. The information, content and/or conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.
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