Fatigue in Primary Mitochondrial Disease: Understanding The Patient Experience
Автор: United Mitochondrial Disease Foundation
Загружено: 2021-09-17
Просмотров: 1687
Описание:
The pharmaceutical company Abliva is testing a new drug intended to reduce fatigue in people with mitochondrial disease (Mito fatigue). Abliva asked Sprout, a health research company, to interview people with mitochondrial disease to learn about the impact of fatigue on their lives. The researchers at Sprout and Abliva used this information to create a questionnaire that can measure fatigue (and whether it’s getting better or worse) in the upcoming drug trial.
Download the patient information sheet (pdf), “Fatigue in Primary Mitochondrial Disease: Understanding The Patient Experience” here: https://www.umdf.org/abliva-study
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