Xtalks Webinar: Pediatric Rare Disease Studies: Patient Centric Approaches
Автор: TFS HealthScience
Загружено: 2022-09-16
Просмотров: 92
Описание:
The phrase “patient-centricity” can mean many things but at heart, it means designing a treatment, clinical trial, or other healthcare solution based on what the patient or their family needs or wants. For clinical researchers, it means making the clinical trial process the easiest and best it can be, from the patient or family’s perspective. A patient-centric approach should start at the time a study or trial is devised. Clinical trial design is one of the most important places to involve the patient voice. For pediatric rare disease natural history studies or therapeutic trials, it is especially important.
Tune into the TFS HealthScience Webinar presented by Scott Schliebner, SVP, Clinical Development Services, Head of Rare Disease and Orphan Drugs, and Alison Sampson, PhD, Head of Rare Disease and Orphan Drugs, Europe to learn:
1. why patient-centricity is important in rare disease research,
2. how the patient voice can be heard in protocol design, and
3. how to facilitate trial participation in rare disease
Explore our full library resources at https://tfscro.com/insights/.
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