PFF Registry Update: Current Research and New Features

Описание: Since 2016, the Registry has enrolled and followed the care of over 2,000 patients within the PFF Care Centers. Looking ahead, the Registry will expand to the community to include data reported directly from PF patients, PF patients who are lung transplant recipients, caregivers, and family members. We invite you to join and help to advance research on this devastating disease.

Junelle Speller, Vice President of the PFF Registry, discusses the expansion of the PFF Registry, and how PFF Registry data is helping researchers find treatments and a cure for PF. Kevin Flaherty, MD, MS, FCCP, Chair of PFF Registry Steering Committee; Ayodeji Adegunsoye, MD, MS, FACP, FCCP; and Ken Vella, PF Patient and PFF Support Group Leader, join the panel and provide their insight.

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Please note that any information contained in this presentation is for informational and/or educational purposes only. It is not intended to be a substitute for professional medical advice. Always consult your personal physician or health care provider with any questions you may have regarding your specific medical condition.

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