My FPIES Story: Living with an "Invisible" Adult Food Allergy

Описание: For over 20 years, I experienced severe episodes that no one could explain—not even doctors. Thirty minutes after eating, I'd have violent vomiting and diarrhea, my vision would go dark, and I'd be fighting to stay conscious. It happened at least twice a year, and I had no idea it was connected to food.

Turns out I had adult FPIES (Food Protein-Induced Enterocolitis Syndrome), a severe non-IgE mediated food allergy. The problem? The medical literature didn't even confirm it could exist in adults until 2012—long after my symptoms started.

In this video, I share my journey from mysterious illness to misdiagnosis to finally being validated by an allergist who recognized what I had. If you've experienced unexplained severe GI symptoms, chronic digestive issues that doctors can't figure out, or have been told you have IBS when nothing seems to help, this story might resonate with you.

FPIES affects an estimated 0.22% of adults—that's half a million in the US alone. But adult cases are likely under-recognized, especially the chronic form.

⏱️ TIMESTAMPS
0:00 Introduction
0:36 What is FPIES?
1:35 My symptoms & the pattern
3:24 Years of misdiagnosis
5:18 The breakthrough
5:46 Seeking answers
6:54 Finally validated by an allergist
8:27 Chronic, acute, and atypical FPIES
9:32 Pain & symptoms in adult FPIES
11:25 Why this matters
12:00 Final thoughts

#FPIES #FoodAllergy #ChronicIllness #InvisibleIllness #RareDisease #NonIgEAllergy #MedicalMystery #Misdiagnosed #IBS #GutHealth #PatientStory

IMPORTANT MEDICAL DISCLAIMER
This video is for general informational purposes only and is not intended as medical advice. I am not a medical doctor or licensed healthcare professional. What is shared is based on my personal experience and research. It should not be used as a substitute for professional medical diagnosis, treatment, or advice.