In this clip, Dr. Holt talks about adrenal insufficiency

Описание: In this clip, Latasha Holt explains what adrenal insufficiency is and why the added diagnosis of epilepsy makes her daughter’s medical journey even more complex. She also shares a powerful truth many families know too well: “We live in silos.”

This short reel highlights the gaps in healthcare communication—and why advocacy, education, and listening matter so much for families navigating rare and complex conditions.

🎧 The full episode is available on here on our YouTube and all podcast platforms

In her episode of This Ability Podcast, host Mary Baudoin sits down with Latasha Holt, a mother, educator, and advocate in Acadiana, to share her family’s journey navigating an ultra-rare medical diagnosis. Latasha opens up about her daughter, Blakelee, who is living with isolated (central) adrenal insufficiency—an exceptionally rare condition affecting approximately one in one million individuals—alongside epilepsy. Together, they break down what this diagnosis means medically, how it differs from more commonly known adrenal disorders, and the challenges of receiving answers when no clear triggering event is present.

Latasha also offers an honest look into daily life managing complex medical needs, from medication routines and emergency preparedness to the emotional and psychological realities faced by both parent and child. She reflects on Blakelee’s perspective, the importance of building strong support systems, and the role of advocacy in raising awareness for rare diseases. This conversation highlights resilience, preparedness, and hope—while providing encouragement and practical insight for families navigating similar journeys and for listeners seeking to better understand the lived experience behind rare medical conditions.

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