A parent's journey with childhood epilepsy - Sarah and Lexi

Описание: This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent navigating her daughter Lexi’s diagnosis. It’s all about sharing stories and support to help others feel less alone.

IMPORTANT:
It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

In this episode:
00:00:00 Introduction
00:03:53 Discovering Lexi's epilepsy
00:08:04 A long diagnostic process
00:11:50 Understanding the role of an epilepsy nurse
00:15:22 Managing seizures: Emergency medication and challenges
00:18:34 Identifying night terrors vs. seizures
00:21:55 Educational Challenges
00:25:47 Epilepsy and puberty
00:29:20 Anxiety as a parent

Resources:
• https://www.youngepilepsy.org.uk/
• https://www.youngepilepsy.org.uk/yout...
• E-Cure network: https://www.youngepilepsy.org.uk/get-...
• Information about epilepsy: https://www.youngepilepsy.org.uk/abou...
• First aid poster
• Shout 24/7 – Text PURPLE to 85258 More info: https://www.youngepilepsy.org.uk/shout
• Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what...

Social Media:
• X: https://x.com/youngepilepsy/
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• Instagram:   / youngepilepsy  
• YouTube:    / youngepilepsy  
• LinkedIn:   / young-epilepsy  
• TikTok:   / youngepilepsy  

Contact: [email protected]