The Power of Making Cancer Treatment Decisions with My Oncologist | Donna’s Story (Multiple Myeloma)

Описание: Donna K. was only 59 years old when she was diagnosed with multiple myeloma, a fairly rare blood cancer. In this video, she details her diagnosis through her first relapses, and shares the patient perspective of how she came to make her treatment decisions.
Her current oncologist, top multiple myeloma specialist Dr. Cristina Gasparetto of Duke, also shares how she helps her patients arrive at treatment decisions at each juncture, and what patients should be asking their own doctors.

In this Series: Our series shines a spotlight on the importance of shared treatment decision-making between patient and doctor. While this is not medical advice, it’s part of an educational series to also bring to light the entire cancer experience, from in the clinic to in the home.
Thank you to Karyopharm Therapeutics for its support of our program.

Videos:
1) The Power of Making Treatment Decisions with My Oncologist : This Video
2) Clinical Trials Helped Save My Life: CAR T & Selinexor :    • Clinical Trials for Multiple Myeloma Patie...  
3) How I Knew I Found the Right Doctor: She Fights for Me :    • How to Know You’ve Found the Right Doctor ...  

Full story & transcript → https://www.thepatientstory.com/cance...
https://www.thepatientstory.com/multi...

The interview has only been edited for clarity.

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Contents of this video:
00:00 - Intro
01:05 - Tell us about yourself
02:05 - What motivates you to fight multiple myeloma?
02:56 - How did you get diagnosed with myeloma?
03:40 - How did you learn you were in remission the first time?
04:53 - What were the bad reactions?
05:16 - When did you learn the myeloma relapsed?
06:45 - What to consider in restarting myeloma treatment?
08:53 - Shared treatment decision making between Patient and Doctor.
16:58 - What happens when a patient stops reacting to or has a bad reaction with a drug?
20:21 - What do you remember were the biggest side-effects?
21:46 - Reaction to M-Spike falling to zero again.
22:23 - Did you decide to continue on maintenance therapy when you achieved remission again?
23:27 - Deciding not to continue on maintenance therapy (again)
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