Voices of Resilience: Women Leaders in the Rare Disease Community
Автор: Katie Couric
Загружено: 2025-04-03
Просмотров: 2280
Описание:
Today, approximately 10,000 rare diseases collectively affect as many as 400 million people around the world, and women leaders have long been at the forefront of bringing awareness to these diseases and driving change. Katie Couric moderates a panel that includes Tania Simoncelli of Chan Zuckerberg Initiative, whose “Rare As One” program supports rare disease researchers and patient-led organizations, Tara Zier who founded the Stiff Person Syndrome Research Foundation, Susan Dando of the Smith-Kingsmore Syndrome Foundation, and Dr. Christina Miyake, a researcher studying TANGO2 deficiency disorder. This panel explores the resilience, determination, and ingenuity required to address the unique challenges in rare disease advocacy and research. Panelists share their experiences in breaking barriers, leading patient-centered initiatives, and building collaborations that move the needle toward treatments and cures. #SponsoredbyCZI
Sign up here for daily email updates from me, Katie Couric, on the news that matters most to you:
https://katiecouric.com/wake-up-call/...
Subscribe to my channel: / katiecouric
Follow me on Instagram: / katiecouric
Subscribe to my podcast: ApplePodcasts.com/KatieCouric
Follow me on Facebook: / katiecouric
Follow me on Twitter: / katiecouric
Повторяем попытку...
Доступные форматы для скачивания:
Скачать видео
-
Информация по загрузке:
