My Ostomy Story | Colitis, Crohn’s, Surgery & Getting My Life Back
Автор: Open Source Ostomy
Загружено: 2026-01-11
Просмотров: 18
Описание:
I was 10 years old when I was diagnosed with aggressive ulcerative colitis that later evolved into Crohn’s disease. After years of medications, hospitalizations, procedures, and living in a body that looked “fine” but was constantly fighting itself, I eventually had my colon removed — and almost 5 years ago, I underwent ileostomy surgery that changed everything.
This is my ostomy story — not the sugar-coated version, but the real one.
I talk about:
• Growing up with UC & Crohn’s
• Losing my colon as a teenager
• The stigma of invisible illness
• Why my ostomy surgery in 2021 became my hardest chapter
• The breakup, job loss, moving home, and long recovery that followed
• How I went from surviving to actually living again
My ostomy didn’t cure me — but it saved my life. And learning to accept this body has been one of the most difficult and meaningful things I’ve ever done.
If you’re navigating IBD, facing surgery, or silently struggling in a body that doesn’t feel like home, I hope this makes you feel less alone.
💬 I’d love to hear your story in the comments — or just say hi!
New videos every week sharing honest life with an ostomy, Crohn’s, healing, identity, and purpose.
🔥 Subscribe here → / @opensourceostomy
💛 Follow me on Instgram → @opesourceostomy
📌 Keywords:
ostomy story, crohns disease, ulcerative colitis, ileostomy, life with an ostomy, crohns surgery, living with ibd, chronic illness journey, invisible illness, ostomy recovery
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