Life with Rami: A Journey with Cerebro-costo-mandibular syndrome (CCMS) | Cincinnati Children's

Описание: Join Ali and Audrey Kandil as they share the heartwarming and challenging journey of their son, Rami, who was born with a rare genetic disorder called Cerebro-costo-mandibular syndrome (CCMS). The video highlights their experiences with Cincinnati Children's Hospital, where a team of dedicated specialists provided comprehensive care that saved Rami's life. From Rami's unique birth circumstances to the incredible support from medical professionals and the emotional milestones in his development, this touching story underscores the importance of advanced medical care and familial love.

00:00 Introduction to Rami's Story
00:09 Rami's Rare Genetic Disorder
00:44 Meet the Kandil Family
00:50 Challenges and Medical Interventions
01:43 The Role of Cincinnati Children's Hospital
02:51 Connecting with Other Families
03:18 A Personal Connection with a Genetics Fellow
04:19 Rami's Progress and Milestones
05:26 Reflections and Gratitude

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