NIH, EURORDIS and more on globalizing orphan drug access at World Orphan Drug Congress USA 2013

Описание: An exciting panel took place at World Orphan Drug Congress USA 2013, on the topic, 'An innovative approach to globalize orphan drug access.'

• Various stakeholders' perspectives to accomplish global harmonization
• Basing price on value and generation of evidence
• Europe and Canada's pilot concept on transfer-value framework
• What various stakeholders can do to help harmonize access globally

Panel participants were:

• Stephen Groft, Director, Office of Rare Diseases Research, NIH
• Yann Le Cam, Chief Executive Officer, EURORDIS
• David Lee, Director, Office of Legislative and Regulatory Modernization, Health Canada
• Yukiko Nishimura, Chief Secretariat, International Relations, Japan Patients Association
• J. Russell Teagarden, Senior Vice President, Medical & Scientific Affairs, National Organization for Rare Disorders (NORD)

World Orphan Drug Congress USA is the largest international, commercially-focused event for the advancement of rare disease research and orphan drug development.

For more information, go to www.terrapinn.com/orphandrug. Or, check out our blog at blogs.terrapinn.com/total-biopharma for up to date information on the orphan drugs and rare disease.