URGENT CALL: Fully Fund the ION283 Safety Study | Lafora Disease Treatment

Описание: Fund treatment. Save lives. Change the future.

Participating in the ION283 Safety Study is a life-changing opportunity for 10 Lafora patients, and it gives the worldwide community hope that we can reach treatments for all our kids.

ION283 could halt the progression of Lafora, a rare, fatal disease that causes epilepsy and childhood dementia. We all want to reach a cure, and this is a huge step forward.

The only barrier is funding.

Six patients are enrolled, and four have already received therapy. We are still fundraising because we MUST enroll all 10 patients. It costs approximately $150,000 to enroll the next eligible child.

Join us today in our efforts to raise awareness about Lafora disease and funds for a cure. Spread the word—time is of the essence, and everyone can make a difference.

Music via Canva:
Sad Moment / Sad and Melancholy Piano Background Music by SoulProdMusic
Achievement Documentary by AKTASOK

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. Learn more: https://chelseashope.org/

(c) Copyright Chelsea's Hope Lafora Children Research Fund