Genetic Testing for Primary Lymphedema: A Mother's Perspective
Автор: VASCERN ERN
Загружено: 2021-11-09
Просмотров: 601
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Watch Carina Mainka's testimonial: Genetic Testing for Primary Lymphedema – A Mother's Perspective
Carina Mainka, an ePAG patient advocate for the VASCERN Pediatric and Primary Lymphedema Working Group (PPL WG) and representative of KIF11 Kids e.V., highlights the crucial role of genetic testing and proper genetic counseling for families dealing with primary lymphedema. She also emphasizes the support available through patient associations.
This video is presented in German with subtitles available in German, English, French, Portuguese, Swedish, Norwegian, Finnish, Italian, Slovenian, Spanish, Dutch, and Danish.
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#PrimaryLymphedema #genetictesting #patientadvocate #geneticcounseling #LymphedemaSupport #KIF11 #rarediseases #PatientAssociation #lymphedema #lymphedemaawareness #pediatrics #patienttestimonial
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