An Update on Treatment for Adults who have SMA - Oct 2023
Автор: Spinal Muscular Atrophy UK
Загружено: 2023-10-20
Просмотров: 1038
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We’re very grateful to our panel of experts for their time in recording our latest webinar – an Update on Treatment for Adults who have SMA.
On the panel:
Fiona Marley - Head of Highly Specialised Commissioning, NHS England
Channa Hewamadduma - Consultant Neurologist at Sheffield
Sherryl Chatfield - Clinical Specialist Neuromuscular Physiotherapist at St George’s
Clare Galtrey - Consultant Neurologist at St George’s
Steven Jones – SMA UK host
This discussion covers, amongst other things: how adults who are thinking about accessing treatment can get a referral to a specialist neuromuscular centre; the possibility of offering adults Spinraza delivery through a port rather than lumbar puncture; the NICE review next year on whether to recommend NHS England continues funding treatments (and possible implications for Northern Ireland, Scotland and Wales); side effects some have been experiencing; clinical trials of other possible future treatments; updates on the Standards of Care.
If you have any questions after having watched the webinar, then please email our Information Team: [email protected]
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