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XCenter: Rare Diseases - Module 1 | Understanding Rare Diseases – What Everyone Needs to Know
Автор: HealthAdvocateX
Загружено: 2025-10-24
Просмотров: 28
Описание: This session will provide a clear foundation for understanding rare diseases, from how they are defined in the U.S. and globally to the myths and realities about their prevalence. We’ll explore the causes and types of rare diseases, the long and often difficult diagnostic journey, and the medical, emotional, and financial impact on patients and families. The session will also highlight health equity considerations and introduce participants to the broader rare disease ecosystem and available resources.
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