Drug Safety for Acute Hepatic Porphyrias
Автор: United Porphyrias Association
Загружено: 2026-01-29
Просмотров: 23
Описание:
Join porphyria expert Dr. Bruce Wang and advocate Nicolas Frias for an introduction to medication safety in acute porphyrias (AIP, HCP, VP & ADP). Learn:
✔️ Why some medications trigger AHP attacks
✔️ How experts decide what is considered safe, potentially unsafe, unsafe, or unknown
✔️ How to use the database in daily life
✔️What to do if a drug is not listed
Educational session only. Always confirm medication decisions with your healthcare team.
Important links:
Participate in drug safety research: https://www.porphyria.org/research-op...
Patient-friendly app and database: https://porphyriadrugs.com/
NAPOS database: https://drugsporphyria.net/
00:00 Welcome and Introductions
3:08 Presentation Overview
7:43 What causes acute porphyria attacks
12:00 How to use the drug safety database
34:45 Making decisions about medications: other factors to consider
45:33 Drug safety research
50:03 Questions
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