Bittersweet Medicine: Fergus Walsh on MLD Part 5: Elson, Scott & Shaw families on Libmeldy's success
Автор: Solomon Riley
Загружено: 2023-02-15
Просмотров: 69
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BBC News on BBC News Channel on Wednesday 15th February 2023.
BBC Medical Editor Fergus Walsh reports.
Joe Elson, 12, First child's treatment of Libmeldy in Italy in 2014.
Nicola Elson, Joe's Mum.
Professor Simon Jones, Paediatric Consultant for Inherited Metabolic Disease at Royal Manchester Children's Hospital.
Dr. Bobby Gaspar, Chief Executive Officer of Orchard Therapeutics.
Professor Robert Wynn, Director of Paediatric Bone Marrow Transplant Programme.
Connie Elson, Joe's eldest sister who has MLD when diagnosed at aged 5, died in 2022 when she was 13 years old.
Leah Scott.
The Shaw Family visited Alnwick Garden with Fergus Walsh.
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