Chris Barry
Автор: Sarcoma Foundation of America
Загружено: 2025-10-29
Просмотров: 38
Описание:
On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous polyposis (FAP) as a teenager and later with a large desmoid tumor, Chris has faced immense medical challenges — including chemotherapy, major surgeries, and an intestinal transplant — yet continues to turn adversity into advocacy.
Through this conversation and his personal reflections, this episode shines a light on the realities of living with a desmoid tumor and FAP, a diagnosis often described as “benign,” or “not that severe” - a phrase that can be deeply misunderstood. Join Chris as he shines a light on what “benign” can actually mean for a desmoid tumor patient, where his journey took him, and how he became involved in the sarcoma community to help advocates for others who find themselves in a similar position.
Links:
Subtype Page (https://curesarcoma.org/sarcoma-subty...)
Sarcoma Patient Pathways Survey (https://curesarcoma.org/get-involved/...)
Discussion Guide (https://curesarcoma.org/sfa-launches-...)
Sarcoma Stories FB Group ( / 512452631597704 )
Connect with Chris:
E-mail: [email protected] (mailto:[email protected])
Instagram @barry.dude
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