TGCT Support's Patient Registry Overview
Автор: TGCT Support
Загружено: 2025-05-05
Просмотров: 236
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We have reached a major milestone, our first publication in a medical journal about our patient registry. This is a moment of celebration, and we'd love to share it with you! Dr Sydney Stern discusses the findings of the TGCT registry data in the recent publication. This covers findings from nearly 500 patients from 32 countries who responded to our registry from October 2022 to December 2023. We will go through the typical diagnostic journey by US and non-US patients, the treatments discussed and received, and the experiences thereafter with recurrence and the impact of disease on daily life. This is the first publication of its kind and this is possible because of you all. We will go through the data, collectively as a community, so please feel free to ask questions live and be part of the discussion.
#TGCT #TGCTStrong #PVNS #TGCTtruth #tenosynovialgiantcelltumor #kneepain #kneetumor #tumor #pigmentedvillonodularsynovitis #diffuse #localized #giantcelltumor #anklepain #hippain
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