NACFC 2025 | Until It’s Done for Everyone

Описание: During plenary 3 of the 2025 North American Cystic Fibrosis Conference, the speakers explore how recent advances in CF care have expanded the horizon of what is possible for people with CF, while also sharing data that highlights the health disparities that prevent equitable access to these advances.

Jennifer L. Taylor, MD, MSCS, from National Jewish Health, examines the biological, socioeconomic, and systemic factors shaping outcomes and offers tangible strategies to bridge existing gaps. Hector Gutierrez, MD, from the University of Alabama at Birmingham, provides a global perspective, showcasing innovative adaptations in low-resource settings, emphasizing the importance of infrastructure and partnerships to translate access into outcomes.

Livestreamed from Seattle Oct. 25, 2025.

0:00:00 | NACFC 2025 | Until It’s Done for Everyone
00:01 | Chris Penland, PhD, presents the Dorothy Andersen and Paul di Sant’Agnese Distinguished Scientific Achievement Award to Jeffrey J. Wine, PhD
07:01 | JP Clancy, MD and Namrata Patel, MPH introduce Plenary 3
14:42 | Jennifer L. Taylor, MD, MSCS, ATSF, discusses health disparities in cystic fibrosis care and research
19:14 | How do racial bias and discrimination affect health outcomes in the broader population?
25:50 | How does racial bias impact CF diagnosis and care?
29:10 | People with CF share their experiences with bias and representation in the CF community
31:38 | How does socioeconomic status affect health outcomes?
34:16 | VIDEO: Rose, an adult with CF, shares her experience with navigating insurance coverage and managing her CF care
38:13 | How do social determinants of health affect representation in clinical research?
40:39 | What steps can we take to achieve justice in CF care and research?
43:01 | How are current research efforts working to improve treatment access for all people with CF?
49:00 | Hector Gutierrez, MD, discusses international efforts to improve CF care
51:11 | What are the barriers causing unequal access to CF care in low- and middle-income countries?
54:09 | How does the Train-the-Trainer (TTT) program address barriers to CF care?
56:34 | How does the TTT program help CF care teams achieve more efficient processes and better clinical outcomes?
1:02:51 | Can the TTT program help CF care teams who are working with limited resources?
1:05:17 | How does the TTT program scale up to multiply CF expertise?
1:08:17 | What are the remaining barriers to success?
1:12:29 | Do CF care teams value the TTT program?
1:16:49 | VIDEO: Dr. Luis Parra, who leads the CF team at Dr. Notti Pediatric Hospital in Mendoza, Argentina, shares his experience with the TTT program
1:20:27 | The future of the TTT program: creating a sustainable learning network