Meet Joey
Автор: Int'l Fibrodysplasia Ossificans Progressiva Assoc
Загружено: 2021-10-21
Просмотров: 9963
Описание:
Meet Joey, 28, a filmmaker in New York City. Joey lives with FOP and shares the unvarnished truth of what it's like living with FOP.
💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: https://ifopa.org/what_is_fop
🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: https://ifopa.org/about_ifopa
👋🏽 CONNECT:
https://fb.com/IFOPA
/ cure_fop
/ ifopa
/ international-fop-association
📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: https://ifopa.org/connect
📆 Get involved with our events: https://ifopa.org/calendar_of_events
❤️ DONATE and join us to fight FOP and support families in their journey: https://ifopa.org/donate
🛍 Get your hands on some IFOPA merch: https://ifopa.org/store
#cureFOP #RareDisease #disability #RAREParenting #caregiver
Повторяем попытку...
Доступные форматы для скачивания:
Скачать видео
-
Информация по загрузке:
