“A Family’s Courageous Journey” with Steve and Melissa Bundy

Описание: Medical Family Series:

“A Family’s Courageous Journey” with Steve and Melissa Bundy

Intro:

Today we begin our medical family series and you are about to be inspired by one family’s story.

Steve and Melissa Bundy have been married for 33 years and have two adult sons. Their oldest son Caleb was born with a rare chromosome deletion and subsequent multiple medical diagnoses.

Steve is the Senior vice president of International ministries at Joni and Friends International Disability Center and has been on staff for past 18 years. And Melissa is a part time wound care home health nurse. This incredible couple sat down with us to share their story. A courageous story where heartache is met with hope.

Let’s listen into our conversation with Steve and Melissa.

Bio:

Steve and Melissa Bundy have been married for 33 years and have two incredible adults sons. Steve is the Senior vice president of International ministries at Joni and Friends International Disability Center and has been on staff for past 18 years. Melissa is a part time wound care home health nurse.

Their 26 year old son Caleb was born with a rare chromosome deletion 2q37.1 partial terminal deletion. This missing piece of the chromosome means he has severe cognition delay, severe autism (unable to speak), apraxia of speech and body, and also a rare form of muscular dystrophy called Bethlem/Ulrich. They were given this diagnosis of the chromosome deletion at ages 10 months, autism at 2 years and muscular dystrophy when he was 12. Caleb has had a very difficult journey in life yet has had a family who has surrounded him with the love, support and advocacy he needed to be as functional and loved for who he is as much as possible.

Caleb’s younger brother Jaron is 22 years old and has been such a huge supportive sibling even in the most challenging of times. Jaron graduated this past year from Belmont University in Nashville, TN with a degree in music production and now has his own business producing music and teaching students in guitar,piano and music production at jaronmicahmusic.com.

Joniandfriends.org

For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead.

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