Living with Hunter Syndrome | Jason's Story
Автор: Hunter Syndrome: MPS II & You
Загружено: 2024-06-17
Просмотров: 2240
Описание:
Jason Madison, an influential figure in the MPS community, shares his personal journey with Hunter syndrome.
Filled with many touching stories, Jason recounts the highs and lows of living with a rare disorder—from coming to terms with his diagnosis and enduring periods of poor health, to discovering his family history and rocking out with his bandmates.
Jason now devotes a significant amount of his time to advocating for the MPS community, having learned to see his diagnosis as a tool to connect with others and make the world a better place.
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Our sincerest thanks to Jason for sharing his story with us, and for working so diligently with the MPS Society to advocate and raise awareness.
If you or someone you know is affected by Hunter syndrome, visit our website for information regarding testing, diagnosis, and life with Hunter syndrome:
https://www.hunterpatients.com
To connect with others in the MPS II community, visit our Facebook and Instagram pages:
/ mpsiiandyou
/ mpsiiandyou
US-NON-11288v1.0 06/24
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