Join the NF Registry Today

Описание: The NF Registry is a patient-driven resource for accelerating
research and finding treatments for all forms of NF, a group of genetic disorders that cause tumors to grow on nerves. It is the
most efficient way to raise awareness for NF, expand the NF
community, and help end NF. Joining the NF Registry is easy
and will make an important difference in the fight against NF.
Please join the NF Registry today at
https://www.nfregistry.org/insight/pr...

Are you an existing NF Registry member? Each May, the
Children’s Tumor Foundation asks existing NF Registry
members to complete the Healthcare Access Survey. This
once-a-year survey asks about you or your child’s NF care
during the last year. The survey is available only during May
NF Awareness Month. All responses are anonymous, and you
will not be asked about the doctors you visit.
Just login to your NF Registry account and select “Clinician
Performance Surveys.”
Need help? Email us at [email protected]

What is the Children's Tumor Foundation?
Founded in 1978, the Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.

Visit our website at https://www.ctf.org/
Donate today at https://www.ctf.org/ways-to-give/

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