ATPA Episode 86: Navigating EDS, Endometriosis, and Self-Advocacy with Gigi Robinson

Описание: Have you ever been told your symptoms were “normal”… when they didn’t feel normal at all?

Have you ever left a doctor’s appointment feeling dismissed, unheard, or defeated?

What if your pain wasn’t in your head — but simply misunderstood?

March is Endometriosis Awareness Month. This episode is dedicated to all women battling endometriosis.

In this powerful episode of Ask the Patient Advocate Podcast, Dr. Elena Borrelli sits down with Gigi Robinson — endometriosis warrior, Ehlers-Danlos syndrome (EDS) advocate, author, speaker, and digital creator — to talk about chronic illness, self-advocacy, and turning lived experience into impact.

Gigi’s journey began in adolescence after repeated injuries led to a diagnosis of hypermobile EDS. But that was only the beginning. After more than a decade of searching for answers, countless tests, and years of debilitating symptoms, she was finally diagnosed with endometriosis in 2022 — a diagnosis that changed her life.

In this conversation, Gigi shares:
• What it’s like to grow up with an invisible illness
• The frustration of normal test results when you know something is wrong
• How a simple blood test revealed a missed diagnosis that years of procedures did not
• Why symptom tracking and specificity are critical in the diagnostic process
• The mindset shift that helped her move from surviving to advocating
• The challenges of navigating chronic illness in the workplace — and how to request meaningful accommodations
• Why she wrote A Kids Book About Chronic Illness and why resilience starts early

If you have questions or topics you'd like us to explore, don't hesitate to reach out to us at [email protected]. Remember, with the right advocate by your side, managing your health becomes a journey of empowerment and clarity.

For personalized assistance and support, reach out to us and discover how we can help you navigate your path to better health. Call us at (947) 517-8395

Connect with Gigi Robinson:
https://www.gigirobinson.com/
  / itsgigirobinson  
  / itsgigirobinson  
  / itsgigirobinson  
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https://www.threads.com/@itsgigirobinson
   / gigirobinson  

Connect with Dr. Elena Borrelli:
  / pathwaypadvocates  
  / pathwaypatientadvocates  
   / @pathwaypatientadvocates9311  
  / pathwaypatientadvocates  
  / pathway-patient-advocates  
http://pathwaypa.com