Caring for babies with brittle bone disease

Описание: (13 Jun 2013)
Denver, US, May 24, 2013
1. Close of 9-month-old Megan Nichols lying on play mat
2. Low mid shot tilt down from Leslie Nichols to with 9-month-old Megan
3. Wide of baby Megan on play mat
4. SOUNDBITE: (English), Leslie Nichols, mother of child with osteogenesis imperfecta
``When we first heard osteogenesis imperfecta and we said, `What? What is that?''
5. Close of baby Megan Nichols
6. Close of baby's leg
7. SOUNDBITE: (English), Leslie Nichols, mother of 9-month-old Megan
"It wasn't an option for us. I was 20 weeks. She was moving. She was, you know. She was mine. And I couldn't. We're actually so blessed to have every day with her because they told us that they didn't think that she would live very long.''
8. Mid pan from Ryan Nichols with son, Pete, 3, to Leslie Nichols with baby Megan
9. SOUNDBITE: (English), Ryan Nichols, father of 9-month-old Megan:
"I had been hopeful in some ways that, oh maybe it's not that bad. Maybe we'll be able to handle her and as long as she doesn't fall down, we're okay, or as long as we don't drop her somewhere. No, our light handling breaks her as well.''
10. Close of Megan having a bottle feed
11. Various of Ryan Nichols feeding Megan
12. SOUNDBITE: (English), Ryan Nichols, Megan's father
"She'll get X-rays and she'll have a bunch of broken ribs, things that we didn't even necessarily know were there. She'll stop moving an arm or a leg when she breaks it and she'll stop moving it for about three days and then she works it back in and starts moving it again. Next thing you know she's going, she's going when it's a normal little break, ribs we don't even know.''
13. SOUNDBITE: (English), Leslie Nichols, Megan's mother
"She's a week and a half out, I guess two weeks out of both arms being broken and she's playing with her toy and she's a tough little girl, I tell you."
14. Various close shots of Megan playing with rattle on her mother's lap
15. SOUNDBITE: (English), Leslie Nichols, Megan's mother
"We think that I broke a few ribs trying to roll her back over. A nurse came out the next morning and checked on everything.''
16. Various close of Megan
17. Various of Leslie Nichols holding baby Megan walking to the nursery and changing Megan's nappy
18. SOUNDBITE: (English), Leslie Nichols, Megan's mother
"We don't know, you know we could lose her next week. She could live to be 20. We just don't know.''
19. Mid shot of Leslie and Ryan Nichols walking out the door with Megan
20 SOUNDBITE: (English), Leslie Nichols, Megan's mother
"We go places, we do things. She's going on a cross country trip. I want her to have these things. I want her to experience these things. It's too important. It's life. And you know what, this is life.''
21. Mid shot over the shoulder of Leslie Nichols placing Megan in the car
22. Close of baby Megan being strapped into the special bed used to transport her
23. Mid top shot of Leslie Nichols laying out clothes specially modified for Megan
24. Close low view of Megan being dressed
25. Wide of Dr. Ellen Roy Elias walking along corridor
26. SOUNDBITE: (English), Dr. Ellen Roy Elias, paediatric geneticist, Children's Hospital of Colorado
"It still is not a disorder that we have a cure for at this moment. We have a treatment that can help improve and make some the symptoms more mild.''
27. Close of Nichols moving Megan on play mat
LEADIN
Learning that your baby has been born with brittle bone disease can be shocking for parents, especially as there is no known cure for the disease.
STORYLINE:
Her parents Ryan and Leslie Nichols were astonished.


Find out more about AP Archive: http://www.aparchive.com/HowWeWork
Twitter:   / ap_archive  
Facebook:   / aparchives   ​​
Instagram:   / apnews  


You can license this story through AP Archive: http://www.aparchive.com/metadata/you...