Living with NF2-SWN: Courageous Camille Thoms

Описание: Camille Thoms lives with NF2-related schwannomatosis (formerly called neurofibromatosis type 2, or NF2.). Despite incredibly difficult struggles, including partial hearing and vision loss, Camille has a beautiful and courageous spirit that shines through. Each year, her family hosts an event to raise funds for NF research, and this video was first played as part of the Children's Tumor Foundation Halloween Bash on October 24, 2020.

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What is the Children's Tumor Foundation?
Children’s Tumor Foundation (CTF) began as the first grassroots organization solely dedicated to finding treatments for NF. Today, CTF is a highly recognized global nonprofit foundation, the leading force in the fight to end NF, and a model for other innovative research endeavors.

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