How Long Does it take to get an EDS Diagnosis? | Ehlers-Danlos Syndrome Awareness Month 2021

Описание: Hello and welcome back to another video (or a big welcome if you're new here!) Today's video is my first for EDS Awareness Month 2021 and I've managed to get some brilliant people on board to talk about their experiences of Ehlers-Danlos Syndrome. So thank you so much to everyone who has taken part in this video, and also thank you to the people who were interested in taking part but unfortunately weren't well enough this time round. In this video, we are focussing on the time it takes to get a diagnosis - why it can take so long and the impact this can have.

I hope hearing all these different stories of what it's like trying to get a diagnosis will be helpful to those who have been through (or are currently going through) something similar. And I hope it will help people who don't have EDS to understand how difficult the diagnostic process is.

Please do let me know if there are any other videos you would like to see me film - whether they're about EDS, another condition or something completely different. There are more videos coming in my EDS Awareness Month 2021 series, so keep your eyes peeled for those. And there will also be a series of Reels on my Instagram about EDS as well.

In this video:

Navy Rainbow Zebra Sweater - Sugarhill Brighton (No longer available)

Where to find support for EDS:

EDS UK - https://www.ehlers-danlos.org

The Ehlers-Danlos Society - https://www.ehlers-danlos.com

Hypermobility Syndromes Association - https://www.hypermobility.org

Where you can find the contributors:

Alexis Instagram - https://www.instagram.com/therarewand...

Alexis Blog - https://therarewanderer.travel.blog

Alyssa - https://www.instagram.com/healwithaly...

Andi -   / azebrareads  

Damita Duplantis - Alaskinsgurl on IG (Couldn't find a link)

Hayley - https://www.instagram.com/ze.clay/?hl... and   / hayleyk.lowery  

Jack -   / mr.jackcat1  

Julia - https://www.instagram.com/julia_k_per...

Steph - https://www.instagram.com/stephkall/?...

Karoline - https://www.instagram.com/karolinelot...

Katya -   / ekaterinaizlesakoroleva  

Maria -   / marifermarin20  

Marisol - https://www.instagram.com/solprni/?hl=en

Nandini - https://www.instagram.com/nini.ribeir...

Nicolle - https://www.instagram.com/nicollewagn...

Paige -   / paigeefithian  

Onikage - https://www.instagram.com/autishblog/...

Rachael -   / therapissedtm  

Previous videos about EDS:

EDS Awareness Month - Making the invisible visible -    • EDS Awareness Month - Making the invisible...  

Daily Life with EDS -    • Daily life with Ehlers Danlos Syndrome - E...  

What is EDS like on MY body -    • What is EDS like on MY Body? | #ThisIsMyED...  

Diagnosis with Ehlers-Danlos Syndrome -    • Diagnosis with Ehlers-Danlos Syndrome | #T...  

Letters from someone with EDS -    • Letters From Someone With EDS | #ThisIsMyE...  

EDS Myths and Facts -    • Ehlers-Danlos Syndrome (EDS)  Myths and Facts  

EDS Awareness Month - Diagnosis and Symptoms -    • EDS Awareness Month 2020 | Diagnosis and S...  

EDS Awareness Month - Daily Life, Positives and Negatives -    • EDS Awareness Month 2020 | Daily Life, Pos...  

Where you can find me:

Blog - www.jaffacat.co.uk
Facebook - https://www.facebook.com/Ramblingsofa...
Twitter - @Jennycole04
Instagram - @Jennycole1988
Pinterest - Jennycole44
Google+ - https://plus.google.com/+JennyColeJaf...
Snapchat - Jennycole44

Anything marked with a * has been sent to me for review purposes, but all opinions are my own and I will only talk about products that I feel fit in with my channel/blog.

Music by Epidemic Sound (http://www.epidemicsound.com)

I'd love to hear your comments and will reply to as many as I can :)