I am Right Here Waiting For Elaprase
Автор: Lee Yee Seng
Загружено: 2013-02-17
Просмотров: 454
Описание:
It's very difficult to imagine when you have a child inflicted with MPS II (Hunter Syndrome), waited for the past 5 years for the treatment and till today still waiting. Watching your own child getting worsen everyday is truely the saddest matter in the world.
And during this family visit at Mentakab , Pahang in Feb 13, we find out the condition for Darmash is actually fit for the treatment, he has no sign for mental compromising, he has his dream and he can express his feeling with his parents so well. I think Malaysian owe him something here, that government should take care of him as he is truely a Malaysian, it's not justifiably to let him wait for 5 years without any medication, we need government support by provide more funding to rescue all these children, there're at least 10 still in the waiting list, he is one of them, if this is your child, will you let him waiting and keep on waiting like this?
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