What is NF2? Tucky's Story

Описание: On January 8th, 2022, Tucker began to complain of “seeing copies” and his left eye began to turn inward. An MRI at a local ER revealed a meningioma. They immediately sent us off in an ambulance to the next state over. A few days after we arrived at the new hospital, Tucker was undergoing a brain surgery, at just five years old, to remove a brain tumor. After the surgery, Tucker’s neurosurgeon sat us down and explained that, although he had been able to remove the entire meningioma, their MRI machine had been more sensitive than the one at our local hospital. Their MRI was able to find two small bilateral vestibular schwannomas (tumors that grow near the brain stem on both sides), which are known to be the hallmark sign of a rare tumor predisposition disorder known as Neurofibromatosis Type 2, or “NF2”.

Donate now to help NF2 patients like Tucky live a fulfilling life: https://donorbox.org/nf2-day-nbs

This NF2 Day, we're excited to announce our fundraising campaign to support NF2 BioSolutions' initiative to establish a specialized biobank dedicated to neurofibromatosis type 2 (NF2). A biobank is a vital resource for researchers, storing biological samples and data from individuals with NF2. Your donation will accelerate research, enable personalized treatment approaches, improve diagnostics, and engage the entire NF2 community in driving progress forward. Join us in making a difference on NF2 Day by contributing to our biobank fund. Together, we can pave the way for a brighter future for NF2 patients and their families. Learn more and donate today!