Learn About the Rare Disease Community: Meet Luisa Leal

Описание: After migrating to the United States and caring for her two daughters, Luisa experienced firsthand the challenges of navigating and accessing the medical system with a language barrier. When she later met the twin sons of an ex-partner, she discovered how difficult it was for their family to find information about #duchennemusculardystrophy (DMD) in Spanish and felt compelled to start The Akari Foundation. Watch as Luisa shares her determination to use her bilingual ability to address unmet needs as part of our #RAREis program dedicated to elevating the voices, faces and experiences of the #raredisease community.

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