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Kathryn Jensen, mother of a child with Hypothalamic Hamartoma
Автор: Epilepsy Foundation
Загружено: 2015-11-02
Просмотров: 941
Описание: Kathryn Jensen, mother of a child with Hypothalamic Hamartoma, urges all families with kids who have rare epilepsies to register for the Rare Epilepsy Network (REN). Kathryn shares how many rare epilepsy kids are not quickly cured and can be dealing with seizures and other side effects their whole lives. Families are in it for the long haul. She signed up for the REN to get answers for her son and others like him.
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