Panel : Living With Heterotaxy - Heterotaxy Conncection 2019

Описание: Living With Heterotaxy: Life with heterotaxy looks different for every family; this panel shares perspectives from three of those families, including a teenager who has heterotaxy herself.

Hallie and Necia Munro: While heterotaxy plays a large role in Hallie’s life, she’s learned how to work with it and live her life to its fullest. She is full of sass and determination and an unparalleled love for life. As her mom, Necia learned that Hallie pushes herself far more than she would ever dare push her. This is Hallie’s journey, and everyone else is just along for the ride.

Liz Katsuleres: As the mother to Joe, a spirited 4-year-old with heterotaxy, Liz has been on a mission to let him experience as much of the world as possible. They enjoy exploring the beauty of Northern California together. Life with heterotaxy isn't always easy, but it has taught Liz to prioritize what really matters and focus on maximizing his quality of life.

Monica Bloom: Monica likes to describe life before having a child with heterotaxy as the “Pre-Lauren Era.” She fully intended to return to work as a music educator when Lauren was ready for school and had no idea that those teaching skills would prove to be more critical as tools to help cope and learn to live life with a medically complex child. As a military family, Monica has had a crash course in advocating for the best possible care in an ever-changing environment. As Monica says, "Living with our heterotaxy child has been an epic adventure, but I wouldn’t change it for anything."