Rare Disease in Women: LAM

Описание: If you have difficulty breathing during your period, you need to hear Beth’s story. Symptoms began at age 11 when she got her period. In college, her lung collapsed, during her period. Although she told the many doctors she has seen over the years, that her symptoms were directly related to her period, no one really listened. She was finally diagnosed at age 36 when her symptoms were dire. Her story is astounding, and now, she has taken steps to help herself, against doctors recommendations.

Meet Beth Hull Daugherity - a twice rare disease patient with Lymphangioleiomyomatosis (LAM) and Ehlers-Danlos Syndrome.

Disclaimer: This information is not intended to treat or diagnose any condition. Beth’s health choices are her own and not prescriptive for any other patients. To learn more about LAM, visit The LAM Foundation at www.thelamfoundation.org. To reach out to Beth, find her on Facebook at Beth Hull Daugherity.

The host, Eva Grayzel, is a survivor of oral cancer. Her story is astounding, too. It’s a classic story of doctors not knowing that the symptoms could be a serious disease. The delay in her diagnosis resulted in a late stage cancer diagnosis, and many long term effects of the treatment.
Https://www.evagrayzel.com

Eva advocates for oral cancer patient education:
https://www.SixStepScreening.org