Bone Health and Transition to Adult Care in Duchenne Muscular Dystrophy

Описание: This video discusses Bone Health and Transition to Adult Care in young people and adults who are living with Duchenne muscular dystrophy, as part of a series of videos on bone health and Duchenne muscular dystrophy. To watch other videos, please visit:

Monitoring of Bone Health in People Living with Duchenne Muscular Dystrophy –    • Monitoring Bone Health in Adults Living wi...  
Treatment of Osteoporosis in People Living with Duchenne Muscular Dystrophy –    • Bone Health and Transition to Adult Care i...  

The development of this video is jointly funded by Muscular Dystrophy UK and Action Duchenne.

Animated by ‪@inertiacreativeltd‬ https://inertiacreative.co.uk/

The voiceover is by Benjamin James, a young man who lives with Duchenne Muscular Dystrophy, a Duchenne patient advocate and freelancer for Pathfinders Neuromuscular Alliance.

The video is developed by UK experts in the NorthStar network. The NorthStar network is the world’s largest natural history study of boys and men with Duchenne muscular dystrophy (DMD) and a clinical network of UK-wide healthcare professionals focusing on the best clinical management of DMD.

At Action Duchenne, we help the Duchenne community by providing essential information and advice from the point of diagnosis. We are driven by a team with lived experience, and journey together with families to help them make informed decisions. Our work is defined by our core values of empathy, respect, and inclusivity, ensuring every member of our community feels heard and connected. We are dedicated to fostering a supportive and equitable environment for all those impacted by Duchenne.
https://www.actionduchenne.org/ ‪@actionduchenne7978‬

Muscular Dystrophy UK connect a community of more than 110,000 people living with one of over 60 muscle wasting and weakening conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically. Visit us on https://www.musculardystrophyuk.org/ ⁨‪@MuscularDystrophyUK‬

Pathfinders Neuromuscular Alliance is a user led charity, run entirely for and by people with muscle-weakening conditions. We provide social and support services, a range of information guides, events and outreach, and research and campaign on issues that matter to adults living with muscle-weakening conditions. Learn more: https://www.pathfindersalliance.org.uk/