The patients priced out of orphan drugs - BBC Newsnight
Автор: BBC Newsnight
Загружено: 2019-04-17
Просмотров: 4047
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Orphan drugs can make some peoples lives a lot better. But many are not available on the NHS.
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Louise Moorhouse, has a rare genetic condition called phenylketonuria or PKU, which severely affects diet. She took life-changing drugs for three years as part of a clinical trial, but was then denied further access.
Kuvan reduced the levels of phenylalanine in many people with PKU. But for NHS patients, it wasn't available because of the £70,000 price tag from its producer BioMarin.
Deborah Cohen investigates.
Newsnight is the BBC's flagship news and current affairs TV programme - with analysis, debate, exclusives, and robust interviews.
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