Patient Partner Role in Breast Cancer Study | LUNGevity Webinar

Описание: We invite you to watch our webinar series, developed in partnership with the LUNGevity Foundation, to explore the vital role that people with cancer can play in designing clinical trials. Through engaging panelist presentations and discussions, these webinars highlight flagship collaborations from both the patient partner’s and the researcher’s perspectives.

The third episode of our webinar series illustrates the transformative impact of patient partner involvement in the research process. By examining the POSITIVE study, a breast cancer-focused clinical trial, we explore real-world examples of successful patient partner-researcher collaborations. Featuring Teresa Ferriero, PhD, patient partner of the POSITIVE study, Olivia Pagani, MD, scientific chair of the POSITIVE study, Monica Ruggeri, operational lead of the POSITIVE study and Alexandre Costa Alencar, MD, RTFCCR.

Introductions: 0:00 – 1:54
Meet moderator Alexandre Costa Alencar, MD, head of cancer research programs at Rising Tide Foundation for Clinical Cancer Research, as he establishes the goals of this webinar series and introduces the panelists.

Teresa Ferriero, PhD, patient partner of the POSITIVE study
Olivia Pagani, MD, scientific chair of the POSITIVE study
Monica Ruggeri, operational lead of the POSITIVE study

Explaining the POSITIVE study: 2:10 – 5:59
Learn more about the POSITIVE study, an international clinical trial of 500 patients, to understand its important goals. 

How the Collaboration Began: 6:00 – 10:52
The panelists emphasize the importance of the POSITIVE study and discuss how initial patient survey data allowed the researchers to begin the study design process with patients’ needs in mind.

Examples of Empowering Patients: 10:53 – 25:17
Here the panelists discuss the roles of patient involvement in many aspects of the POSITIVE clinical trial—including participation in the steering committee, fundraising events, and dissemination of study results. 

Effective Involvement of Patients: 25:18 – 50:25
Researchers share their key considerations when choosing patients to collaborate with. They also note that it’s time-consuming to identify the right patients and build these relationships—but the investment is worth the impact. Don’t miss this frank discussion as the panelists explain their expectations from the collaboration process, such as including financial compensation and emotional fulfillment.

Wrap-up Discussion and Key Takeaways: 50:26 – 59:10
Panelists discuss the biggest learnings and challenges from collaborating on the POSITIVE study and offer final tips for successful patient-researcher partnerships.

Stay in contact with the Rising Tide Foundation for Clinical Cancer Research:

LinkedIn:   / rising-tide_2  
Website:  https://www.risingtide-foundation.org...