Living with Noonan Syndrome: insights and perspectives of adults
Автор: BRIDGE
Загружено: 2024-02-28
Просмотров: 282
Описание:
BRIDGE Lab hosted a candid virtual webinar with April Anschutz and Matthew Baltes, advocates living with Noonan syndrome, as they share their journey from diagnosis to adulthood.
Our speakers include:
Dr. Tamar Green, Principal Investigator at Stanford University's BRIDGE Lab
April Anschutz, Noonan Syndrome advocate, living with Noonan Syndrome
Matthew Baltes, Science Teacher living with Noonan Syndrome
This will be an interactive session answering YOUR questions.
Some of the interesting questions asked by the community and answered on this webinar are:
How would you have wanted Noonan Syndrome described to you as a child?
What would you say to your teenage self?
What was the best/most effective therapy you or your child received?
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