The ALGO Podcast 13: Living with Tourettes and Functional Neurological Disorder. With Lola Okeefe.

Описание: Join us for the 13th episode of The ALGO Podcast where Lola and I explore the realities of struggling, coping, and living with a difficult combination of Tourettes and Functional Neurological Disorder (FND). We go through Lola's journey of reaching her multiple diagnosis, plus the highest of the highs and the lowest of the lows that it came with.

Till Next time.

Chapters:
00:00 - Life with Tourettes syndrome and FND
01:52 - FND symptoms and experiences
03:29 - Fast forward to misdiagnosis, lucky to be diagnosed
04:10 - Ticks can cause both Tourettes and epilepsy
06:22 - Urges and tics in Tourettes disease
10:08 - CBT Difficulty, milestones, personal preference
13:27 - Misconceptions and stereotypes about Tourettes syndrome
18:07 - Accepting depression, denial, and swearing
18:51 - Denial, and recovery
19:20 - Complex tics led to drug use in school
19:40 - Struggling with Tourettes
21:15 - Advice Mums rock, no shame
22:15 - Inspiration Mums support, understanding
23:55 - First symptoms ticking, FMD, blacking out
24:48 - Seizures and treatment
25:24 - Difference between FND and Tourette ticks
26:53 - Options for Tourettes. CBT, anti-psychotics, mushrooms
30:17 - Controversy over anti-psychotics, home-schooled, NHS
32:14 - Special education consultant fought for me
33:40 - Gym calms tics, enjoys music
35:33 - Feeling comfortable in the gym
36:57 - Aerobic exercise calms, enhances aesthetics
39:42 - Balance of knowing body, seizures explained
41:00 - Brain misfires cause fits
44:33 - Setting up phone for being home alone with dogs help
45:46 - Struggling with Tourettes in school
48:04 - Good bike riding, nice ticks
48:33 - Feelings of satisfaction and ostracism in childhood
50:08 - Therapy for childhood depression
50:21 - Specialized therapist for Tourettes
51:31 - Resilience and mental health benefits
55:58 - Rough childhood with Tourettes
59:29 - Being part of a support group changed my perspective on my condition
01:00:34 - Teenage life, sometimes well, sometimes not
01:01:08 - Discussing illness with friends and family
01:05:03 - Cooking relieves stress, calms down
01:05:26 - Tourettes tips and advice from mom, vlogger, interviewer
01:09:23 - Difficulty recording tick attacks
01:12:38 - Controversial advocate for Tourettes treatment speaks out
01:16:04 - Final goodbye with gratitude